What we do
About our project
The number of dementia patients among culturally and linguistically diverse (CALD) populations in the Netherlands will increase drastically over the next decades. Differences in language, culture, and education, as well as a lack of cross-cultural diagnostic assessment and treatment tools, hamper dementia diagnosis and care in CALD patients. Adequate support for caregivers and patients with a diverse background is lacking in the post-diagnostic phase.
What is the aim?
The first goal of this study is to develop a cross-cultural, in-depth cognitive testing protocol, to improve dementia diagnostics in CALD patients in the memory clinic. This part of the project is a collaboration between multicultural memory clinics across the Netherlands, as well as other partners, such as Pharos and SPIOR. Our second goal is to improve the quality of life (QOL) and caregiver strain in CALD dementia patients and caregivers, by means of personalized therapy: Solution Focused Brief Therapy (SFBT). Lastly, we will provide healthy CALD people with education about dementia and aging.
How do we perform this research?
What is the desirable outcome?
Our aim is to diagnose all of our patients in a valid, reliable and timely manner, irrespective of the cultural, educational or linguistic background of the patient. With our RCT, we hope to provide patients and their families with tools that will help them in the phase right after the diagnosis.
Funds & Grants
Collaborations
Geriatric Medicine
Neurology
Outside Erasmus MC
Multicultural memory clinics across the Netherlands
Alzheimer Nederland
Pharos
Erasmus Universiteit Rotterdam’
Hogeschool Rotterdam
SPIOR
Stichting Voorlichters Gezondheid
Publications
- Goudsmit, M., van Campen, J., Schilt, T., Hinnen, C., Franzen, S. & Schmand, B. (2018) One size does not fit all: comparative diagnostic accuracy of the Rowland Universal Dementia Assessment Scale and the Mini Mental State Examination in a very low educated multicultural memory clinic population. Dementia and Geriatric Cognitive Disorders Extra, 8(2), pp. 290-305.
- Franzen, S., van den Berg. E. & Papma, J.M. (2018). Neuropsychologische diagnostiek bij niet-Westerse migranten [Neuropsychological diagnostics with non-Western immigrants]. Tijdschrift voor Neuropsychologie, 13(1), pp. 59-67.
- Goudsmit, M., van Campen, J.P.C.M., Franzen, S., van den Berg, E., Schilt, T. & Schmand, B. (2020) Dementia detection with a combination of informant-based and performance-based measures in low-educated and illiterate elderly migrants. The Clinical Neuropsychologist. Advance online publication, doi:10.1080/13854046.2020.1711967.
- Franzen, S., van den Berg, E., Goudsmit, M., Jurgens, C.K., van de Wiel, L., Kalkisim, Y., Uysal-Bozkir, Ö., Ayhan, Y., Nielsen, T.R., & Papma, J.M. (2020) A systematic review of neuropsychological tests for the assessment of dementia in non-Western, low-educated or illiterate populations. JINS: Journal of the International Neuropsychological Society, 26(3), pp. 331-351, doi:10.1017/S1355617719000894.
- Franzen, S., van den Berg, E., Kalkisim, Y., van de Wiel, L., Harkes, M., van Bruchem-Visser, R.L., de Jong, F.J., Jiskoot, L.C., & Papma, J.M. (2019) Assessment of visual association memory in low-educated, non-Western immigrants with the modified Visual Association Test. Dementia and Geriatric Cognitive Disorders, 47(4-6), pp. 345-354, doi: 10.1159/000501151.
